Mark Tami MP joins new APPG on Children, Teenagers and Young Adults with Cancer

Mark Tami MP at the launch of the APPG CTYAC which is being supported in partnership by CLIC Sargent and Teenage Cancer Trust

MARK TAMI MP has given his support to children and young people with cancer as he joined a new group to strengthen their voice in Parliament.

The launch of the All-Party Parliamentary Group on Children, Teenagers and Young Adults with Cancer (APPG CTYAC) saw children, young people, their parents, a number of MPs, charity representatives and high-level influencers come together to speak about what matters to young people with cancer. 

Recent developments in cancer care have recognised that young people with cancer have unique needs, but progress is still needed in cancer services to improve diagnosis, access to age-specific care and post-treatment support for this patient group.

As experts in children and young people with cancer, Teenage Cancer Trust and CLIC Sargent have teamed up to provide administrative support as the Secretariat for this pioneering Group.  The charities are calling on MPs, children, young people and families to get involved, share their ideas and experiences to support the Group’s mission and join the conversation by using #YoungCancerVoices.

Mark Tami MP, who joined the APPG as an officer, had this to say: “I was keen to join this group as soon as I heard it was forming. I’m very much looking forward to raising much needed awareness of the issues affecting children, teenagers, and young adults with cancer. And also raising awareness of the challenges that their families face as well.

“The event went down very well and hearing first-hand from young people who are going through cancer really highlighted the importance of amplifying young cancer voices in Parliament and I am proud to be part of this new group.”

One of the people who spoke at the APPG CTYAC launch was Ruth Munglani, 24 from East London, who was diagnosed with Ewing’s Sarcoma, a rare form of cancer, at just 21 years old

Ruth said: “Now that I have been through cancer and am living with the side effects, I know just how much of a priority childhood, teenage and young adult cancer needs to be. I am lucky enough to still be here today, so I feel I have a responsibility to speak up for all the young people who are and will be affected by cancer. I am really excited by the potential the Group presents for focusing on young people with cancer.

“When Teenage Cancer Trust offered me the opportunity to meet with the All-Party Parliamentary Group and speak today about my experience, I couldn’t turn it down. It was a chance for me to get young people’s voices heard, and to positively enact change for young people with cancer.”

Tilly Somervell, from Colchester, who was diagnosed with thyroid cancer at 13 and is now in remission, said: “With the best will in the world, if you are a civil servant sitting in Whitehall you can’t possibly know what it’s like to be a 15-year-old girl with cancer living in Essex.” Despite everything, Tilly said cancer had given her a gift. “It has made me strong and maybe because of that I can help to change things for other people. Because I’m one of the lucky ones who gets to tell their story and talk about the services and how well they work, or not, for people like me I hope that I can make a difference…certainly if people like you listen to people like me then I’m pretty confident we can make things better for everyone.”

For further information on the work of the Group visit: clicsargent.org.uk/youngcancervoices 

To contact the All-Party Parliamentary Group for Children, Teenagers and Young Adults with Cancer, email the Secretariat at APPG@clicsargent.org.uk